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{\fhiminor\f31506\fbidi \fswiss\fcharset238\fprq2{\*\panose 020f0502020204030204}Calibri;}{\fbiminor\f31507\fbidi \froman\fcharset238\fprq2{\*\panose 02020603050405020304}Times New Roman{\*\falt Times New Roman};}
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{\f422\fbidi \fswiss\fcharset0\fprq2 Tahoma;}{\f421\fbidi \fswiss\fcharset204\fprq2 Tahoma Cyr;}{\f423\fbidi \fswiss\fcharset161\fprq2 Tahoma Greek;}{\f424\fbidi \fswiss\fcharset162\fprq2 Tahoma Tur;}
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{\flomajor\f31515\fbidi \froman\fcharset186\fprq2 Times New Roman Baltic{\*\falt Times New Roman};}{\flomajor\f31516\fbidi \froman\fcharset163\fprq2 Times New Roman (Vietnamese){\*\falt Times New Roman};}
{\fdbmajor\f31520\fbidi \froman\fcharset0\fprq2 Times New Roman{\*\falt Times New Roman};}{\fdbmajor\f31519\fbidi \froman\fcharset204\fprq2 Times New Roman Cyr{\*\falt Times New Roman};}
{\fdbmajor\f31521\fbidi \froman\fcharset161\fprq2 Times New Roman Greek{\*\falt Times New Roman};}{\fdbmajor\f31522\fbidi \froman\fcharset162\fprq2 Times New Roman Tur{\*\falt Times New Roman};}
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{\fdbmajor\f31525\fbidi \froman\fcharset186\fprq2 Times New Roman Baltic{\*\falt Times New Roman};}{\fdbmajor\f31526\fbidi \froman\fcharset163\fprq2 Times New Roman (Vietnamese){\*\falt Times New Roman};}
{\fhimajor\f31530\fbidi \froman\fcharset0\fprq2 Cambria;}{\fhimajor\f31529\fbidi \froman\fcharset204\fprq2 Cambria Cyr;}{\fhimajor\f31531\fbidi \froman\fcharset161\fprq2 Cambria Greek;}{\fhimajor\f31532\fbidi \froman\fcharset162\fprq2 Cambria Tur;}
{\fhimajor\f31535\fbidi \froman\fcharset186\fprq2 Cambria Baltic;}{\fhimajor\f31536\fbidi \froman\fcharset163\fprq2 Cambria (Vietnamese);}{\fbimajor\f31540\fbidi \froman\fcharset0\fprq2 Times New Roman{\*\falt Times New Roman};}
{\fbimajor\f31539\fbidi \froman\fcharset204\fprq2 Times New Roman Cyr{\*\falt Times New Roman};}{\fbimajor\f31541\fbidi \froman\fcharset161\fprq2 Times New Roman Greek{\*\falt Times New Roman};}
{\fbimajor\f31542\fbidi \froman\fcharset162\fprq2 Times New Roman Tur{\*\falt Times New Roman};}{\fbimajor\f31543\fbidi \froman\fcharset177\fprq2 Times New Roman (Hebrew){\*\falt Times New Roman};}
{\fbimajor\f31544\fbidi \froman\fcharset178\fprq2 Times New Roman (Arabic){\*\falt Times New Roman};}{\fbimajor\f31545\fbidi \froman\fcharset186\fprq2 Times New Roman Baltic{\*\falt Times New Roman};}
{\fbimajor\f31546\fbidi \froman\fcharset163\fprq2 Times New Roman (Vietnamese){\*\falt Times New Roman};}{\flominor\f31550\fbidi \froman\fcharset0\fprq2 Times New Roman{\*\falt Times New Roman};}
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{\flominor\f31556\fbidi \froman\fcharset163\fprq2 Times New Roman (Vietnamese){\*\falt Times New Roman};}{\fdbminor\f31560\fbidi \froman\fcharset0\fprq2 Times New Roman{\*\falt Times New Roman};}
{\fdbminor\f31559\fbidi \froman\fcharset204\fprq2 Times New Roman Cyr{\*\falt Times New Roman};}{\fdbminor\f31561\fbidi \froman\fcharset161\fprq2 Times New Roman Greek{\*\falt Times New Roman};}
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{\fdbminor\f31564\fbidi \froman\fcharset178\fprq2 Times New Roman (Arabic){\*\falt Times New Roman};}{\fdbminor\f31565\fbidi \froman\fcharset186\fprq2 Times New Roman Baltic{\*\falt Times New Roman};}
{\fdbminor\f31566\fbidi \froman\fcharset163\fprq2 Times New Roman (Vietnamese){\*\falt Times New Roman};}{\fhiminor\f31570\fbidi \fswiss\fcharset0\fprq2 Calibri;}{\fhiminor\f31569\fbidi \fswiss\fcharset204\fprq2 Calibri Cyr;}
{\fhiminor\f31571\fbidi \fswiss\fcharset161\fprq2 Calibri Greek;}{\fhiminor\f31572\fbidi \fswiss\fcharset162\fprq2 Calibri Tur;}{\fhiminor\f31575\fbidi \fswiss\fcharset186\fprq2 Calibri Baltic;}
{\fhiminor\f31576\fbidi \fswiss\fcharset163\fprq2 Calibri (Vietnamese);}{\fbiminor\f31580\fbidi \froman\fcharset0\fprq2 Times New Roman{\*\falt Times New Roman};}
{\fbiminor\f31579\fbidi \froman\fcharset204\fprq2 Times New Roman Cyr{\*\falt Times New Roman};}{\fbiminor\f31581\fbidi \froman\fcharset161\fprq2 Times New Roman Greek{\*\falt Times New Roman};}
{\fbiminor\f31582\fbidi \froman\fcharset162\fprq2 Times New Roman Tur{\*\falt Times New Roman};}{\fbiminor\f31583\fbidi \froman\fcharset177\fprq2 Times New Roman (Hebrew){\*\falt Times New Roman};}
{\fbiminor\f31584\fbidi \froman\fcharset178\fprq2 Times New Roman (Arabic){\*\falt Times New Roman};}{\fbiminor\f31585\fbidi \froman\fcharset186\fprq2 Times New Roman Baltic{\*\falt Times New Roman};}
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\par }}\ltrpar \sectd \ltrsect\linex0\headery708\footery708\colsx708\endnhere\sectlinegrid360\sectdefaultcl\sectrsid3897963\sftnbj {\footerr \ltrpar \pard\plain \ltrpar\s25\qc \li0\ri0\widctlpar
\tqc\tx4536\tqr\tx9072\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0 \rtlch\fcs1 \af0\afs24\alang1025 \ltrch\fcs0 \fs24\lang1051\langfe1051\cgrid\langnp1051\langfenp1051 {\field{\*\fldinst {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid2040260 
PAGE   \\* MERGEFORMAT}}{\fldrslt {\rtlch\fcs1 \af0 \ltrch\fcs0 \lang1024\langfe1024\noproof\insrsid6975551 1}}}\sectd \ltrsect\linex0\headery708\footery708\colsx708\endnhere\sectdefaultcl\sftnbj {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid2040260 
\par }\pard \ltrpar\s25\ql \li0\ri0\widctlpar\tqc\tx4536\tqr\tx9072\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid2040260 
\par }}{\*\pnseclvl1\pnucrm\pnstart1\pnindent720\pnhang {\pntxta .}}{\*\pnseclvl2\pnucltr\pnstart1\pnindent720\pnhang {\pntxta .}}{\*\pnseclvl3\pndec\pnstart1\pnindent720\pnhang {\pntxta .}}{\*\pnseclvl4\pnlcltr\pnstart1\pnindent720\pnhang {\pntxta )}}
{\*\pnseclvl5\pndec\pnstart1\pnindent720\pnhang {\pntxtb (}{\pntxta )}}{\*\pnseclvl6\pnlcltr\pnstart1\pnindent720\pnhang {\pntxtb (}{\pntxta )}}{\*\pnseclvl7\pnlcrm\pnstart1\pnindent720\pnhang {\pntxtb (}{\pntxta )}}{\*\pnseclvl8
\pnlcltr\pnstart1\pnindent720\pnhang {\pntxtb (}{\pntxta )}}{\*\pnseclvl9\pnlcrm\pnstart1\pnindent720\pnhang {\pntxtb (}{\pntxta )}}\pard\plain \ltrpar\qc \li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 
\rtlch\fcs1 \af0\afs24\alang1025 \ltrch\fcs0 \fs24\lang1051\langfe1051\cgrid\langnp1051\langfenp1051 {\rtlch\fcs1 \af0 \ltrch\fcs0 \b\insrsid2780827\charrsid4606000 Predkladacia spr\'e1va}{\rtlch\fcs1 \af0 \ltrch\fcs0 \b\insrsid7029430\charrsid4606000 

\par }\pard \ltrpar\ql \li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid2780827\charrsid4606000 
\par 
\par }\pard \ltrpar\qj \fi708\li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid9320980 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9320980\charrsid4606000 N\'e1vrh materi\'e1lu }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid13786497\charrsid4606000 \'84N\'e1rodn\'e1 strat\'e9gia rozvoja zdravotnej starostlivosti }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6165201\charrsid4606000 o pacientov}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15429327\charrsid4606000  }{\rtlch\fcs1 
\af0 \ltrch\fcs0 \insrsid13786497\charrsid4606000 so zriedkav\'fdmi chorobami na roky}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid5847014\charrsid4606000  2012}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13786497\charrsid4606000 -2013\'93}{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid9320980\charrsid4606000 , }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid11537760\charrsid4606000 sa }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9320980\charrsid4606000 predklad\'e1 ako iniciat\'edvny materi\'e1l.}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid13786497\charrsid4606000 
\par }\pard \ltrpar\qj \li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid11361537\charrsid4606000     }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid787996\charrsid4606000 
\par }\pard \ltrpar\qj \fi708\li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid11361537\charrsid4606000 Za zriedkav\'fa chorobu}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid13243293\charrsid4606000  (\'efalej \'84ZCH\'93) }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid11361537\charrsid4606000 sa v\~r\'e1mci Eur\'f3pskej \'fanie pova\'9euje tak\'e1 choroba, ktor\'e1 sa vyskytuje u\~menej ne\'9e 5 os\'f4b spomedzi\~10\~
000, teda 1 pacient na 2000 a\~viac os\'f4b. }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3934364\charrsid4606000 V\~s\'fa\'e8asnej dobe je zn\'e1mych }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3897963\charrsid4606000 viac ako }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid3934364\charrsid4606000 6\~000 r\'f4znych ZCH}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid5847014\charrsid4606000 ,}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3934364\charrsid4606000  pri\'e8om sa o}{\rtlch\fcs1 \ab\af0 \ltrch\fcs0 
\cs22\insrsid11361537\charrsid4606000 dhaduje \'9ee }{\rtlch\fcs1 \ab\af0 \ltrch\fcs0 \cs22\insrsid5847014\charrsid4606000 ZCH postihuj\'fa }{\rtlch\fcs1 \ab\af0 \ltrch\fcs0 \cs22\insrsid11361537\charrsid4606000 celkovo 6 - 8 % popul\'e1cie v rozvinut\'fd
ch krajin\'e1ch, \'e8o v\~rozsahu kraj\'edn Eur\'f3pskej \'danie znamen\'e1 postihnutie 27 -\~ 36 mili\'f3nov \'beud\'ed.}{\rtlch\fcs1 \ab\af0 \ltrch\fcs0 \cs22\b\insrsid11361537\charrsid4606000  }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid11361537\charrsid4606000 Etiol\'f3gia je ve\'bemi heterog\'e9nna, zhruba v 80% s\'fa to dedi\'e8n\'e9 choroby}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid787996\charrsid4606000  (napr. vroden\'e9 v\'fdvojov\'e9 }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid16321879\charrsid4606000 chyby, dedi\'e8n\'e9 metabolick\'e9 poruchy, detsk\'e9 n\'e1dory}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid5847014\charrsid4606000 , monog\'e9nov\'e9 choroby}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000 )}{
\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid11361537\charrsid4606000 . \'cfal\'9aie }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 ZCH}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000  }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid11361537\charrsid4606000 s\'fa podmienen\'e9 infekciami, poruchami imunity, alergiami a pod. Spravidla maj\'fa }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000 z\'e1va\'9en\'fd}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid11361537\charrsid4606000  dopad na kvalitu \'9eivota a\~soci\'e1lne za\'e8lenenie, resp. ohrozuj\'fa \'9eivot jedinca.  
\par }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000 Na z\'e1klade vy\'9a\'9aie uveden\'fdch faktov preto Eur\'f3pska komisia svoj\'edm rozhodnut\'edm zo d\'f2a 30.11.2009 zriadila V\'fdbor expertov Eur\'f3pskej \'fanie pre }{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid13243293\charrsid4606000 ZCH}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000  - The European Union Committee of Experts on Rare Diseases - EUCERD,}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid5847014\charrsid4606000 
 na podporu vedeckej a\~odbornej podpory v\~prij\'edman\'ed odpor\'fa\'e8an\'ed a}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000  rie\'9aenie danej problematiky }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid5847014\charrsid4606000 sa stalo}{
\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000  jednou z\~ prioritn\'fdch oblast\'ed}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000  Eur\'f3pskej komisie}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid5847014\charrsid4606000  v\~
oblasti zdravotn\'edctva.}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000  V\~zmysle doteraj\'9a\'edch aktiv\'edt a\~odpor\'fa\'e8an\'ed na \'farovni E\'da v\~danej problematike je jej }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid5847014\charrsid4606000 rozhoduj\'face }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000 rie\'9aenie na n\'e1rodnej b\'e1ze ka\'9ed\'e9ho \'9at\'e1tu E\'da}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 , }{
\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid5847014\charrsid4606000 a\~v\'9aetk\'fdm aktivit\'e1m sa}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000  zaviazala aj Slovensk\'e1 republika}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid16321879\charrsid4606000 . N\'e1rodn\'fdm z\'e1stupcom za Slovensk\'fa republiku v\~spom\'ednanom V\'fdbore je hlavn\'fd odborn\'edk Ministerstva zdravotn\'edctva Slovenskej republiky pre }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid13243293\charrsid4606000 odbor lek\'e1rska genetika.}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000  }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid14840503\charrsid4606000 V\~zmysle uveden\'fdch aktiv\'edt preto na p\'f4de MZ SR za\'e8
iatkom roka 2011 vznikla aj pracovn\'e1 skupina pre ZCH, ktor\'e1 }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3897963\charrsid4606000 by mala }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid14840503\charrsid4606000 by\'9d n\'e1sledne transformovan\'e1 na nez\'e1visl
\'fd odborn\'fd poradn\'fd org\'e1n Ministerstva zdravotn\'edctva Slovenskej republiky}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3897963\charrsid4606000  \endash  Komisiu pre ZCH a\~ktor\'e1 kompletne vypracovala predmetn\'fd materi\'e1l po vecnej str\'e1nke.
}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid16321879\charrsid4606000 
\par }\pard \ltrpar\qj \li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid11361537\charrsid4606000 \tab }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13848061\charrsid4606000 

\par }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000      }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 \tab }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 V}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid13243293\charrsid4606000 \~}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 S}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 lovenskej republike doposia\'be}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid3284807\charrsid4606000  neexistuje jednotn\'e1 koncepcia diagnostiky, lie\'e8by a}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3934364\charrsid4606000 \~celkovej }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 starostlivosti o\~
pacientov so }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 ZCH}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 .  }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 Predkladan\'fd materi\'e1l}{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid3284807\charrsid4606000  nadv\'e4zuje na doteraj\'9a\'ed v\'fdvoj v\~E}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 \'da}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000  a pr\'edslu\'9an\'e9 odpor\'fa
\'e8ania. S\'fa\'e8asn\'fd deficit vo v\'fdvoji na Slovensku sa m\'e1 odstr\'e1ni\'9d  ur}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 \'fd}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 chlen\'fdm nap}{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid13243293\charrsid4606000 \'e5}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3934364\charrsid4606000 \'f2an\'edm  odpor\'fa\'e8an\'ed}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 , ktor\'e9 s\'fa definovan\'e9 v\~
EUROPLANE (The European Project for Rare Diseases National Plans Development}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15747159\charrsid4606000  \endash  Eur\'f3psky projekt na rozvoj n\'e1rodn\'fdch pl\'e1nov pre ZCH}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid3284807\charrsid4606000 ), zapojen\'edm }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15747159\charrsid4606000 Slovenskej republiky}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000  do pr\'e1ce EUCERD}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid10816079\charrsid4606000 u}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000  a\~do \'efal\'9a\'edch najv\'fdznamnej\'9a\'edch eur\'f3pskych aktiv\'edt.}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000  }{\rtlch\fcs1 
\af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 Doteraj\'9aie eur\'f3pske iniciat\'edvy identifikovali nieko\'beko z\'e1sadn\'fdch probl\'e9mov:
\par {\listtext\pard\plain\ltrpar \rtlch\fcs1 \af0 \ltrch\fcs0 \f3\insrsid3284807\charrsid4606000 \loch\af3\dbch\af0\hich\f3 \'b7\tab}}\pard \ltrpar\qj \fi284\li0\ri0\widctlpar
\jclisttab\tx720\wrapdefault\aspalpha\aspnum\faauto\ls2\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 nedostato\'e8n\'e1 identifik\'e1cia rozsahu problematiky ve\'bemi heterog\'e9nnych chor\'f4
b, nedostato\'e8n\'e1 identifik\'e1cia ZCH v\~r\'e1mci MKCH 10,
\par {\listtext\pard\plain\ltrpar \rtlch\fcs1 \af0 \ltrch\fcs0 \f3\insrsid3284807\charrsid4606000 \loch\af3\dbch\af0\hich\f3 \'b7\tab}z\'e1va\'9en\'e9 nedostatky v diagnostike a lie\'e8be pre extr\'e9mnu zriedkavos\'9d}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid15747159\charrsid4606000 ,}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 
\par {\listtext\pard\plain\ltrpar \rtlch\fcs1 \af0 \ltrch\fcs0 \f3\insrsid3284807\charrsid4606000 \loch\af3\dbch\af0\hich\f3 \'b7\tab}}\pard \ltrpar\qj \fi284\li0\ri0\widctlpar
\jclisttab\tx720\wrapdefault\aspalpha\aspnum\faauto\ls1\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 chybn\'e9 alebo oneskoren\'e9 diagnostikovanie vedie \'e8asto ku nezvratn\'e9mu po\'9a
kodeniu zdravia alebo smrti pacienta}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15747159\charrsid4606000 ,}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 
\par {\listtext\pard\plain\ltrpar \rtlch\fcs1 \af0 \ltrch\fcs0 \f3\insrsid3284807\charrsid4606000 \loch\af3\dbch\af0\hich\f3 \'b7\tab}nerovnomernos\'9d a  nedostato\'e8n\'e1 kvalita poskytovan\'fdch slu\'9eieb}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid15747159\charrsid4606000 ,}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 
\par {\listtext\pard\plain\ltrpar \rtlch\fcs1 \af0 \ltrch\fcs0 \f3\insrsid3284807\charrsid4606000 \loch\af3\dbch\af0\hich\f3 \'b7\tab}ve\'bemi obmedzen\'fd v\'fdber liekov pre lie\'e8bu }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15747159\charrsid4606000 ZCH,}{
\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 
\par {\listtext\pard\plain\ltrpar \rtlch\fcs1 \af0 \ltrch\fcs0 \f3\insrsid3284807\charrsid4606000 \loch\af3\dbch\af0\hich\f3 \'b7\tab}}\pard \ltrpar\qj \fi284\li0\ri0\widctlpar
\jclisttab\tx720\wrapdefault\hyphpar0\aspalpha\aspnum\faauto\ls1\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 v\'fdskum ZCH je n\'e1ro\'e8n\'fd, v\~oblasti v\'fdskumu liekov pre ZCH j
e ekonomicky m\'e1lo efekt\'edvny, 
\par {\listtext\pard\plain\ltrpar \rtlch\fcs1 \af0 \ltrch\fcs0 \f3\insrsid3284807\charrsid4606000 \loch\af3\dbch\af0\hich\f3 \'b7\tab}}\pard \ltrpar\qj \fi284\li0\ri0\widctlpar
\jclisttab\tx720\wrapdefault\aspalpha\aspnum\faauto\ls1\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 nedostatky v zbere \'fadajov na n\'e1rodnej  a region\'e1lnej \'farovni}{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid15747159\charrsid4606000 ,}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 
\par {\listtext\pard\plain\ltrpar \rtlch\fcs1 \af0 \ltrch\fcs0 \f3\insrsid3284807\charrsid4606000 \loch\af3\dbch\af0\hich\f3 \'b7\tab}nedostato\'e8n\'e9 povedomie  o t\'fdchto chorob\'e1ch tak u\~odbornej ako aj u\~laickej verejnosti}{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid15747159\charrsid4606000 ,}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 
\par {\listtext\pard\plain\ltrpar \rtlch\fcs1 \af0 \ltrch\fcs0 \f3\insrsid3284807\charrsid4606000 \loch\af3\dbch\af0\hich\f3 \'b7\tab}z d\'f4vodu chronick\'e9ho a \'e8asto progres}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15747159\charrsid4606000 \'ed}{
\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 vn}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15747159\charrsid4606000 e}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 ho priebehu t\'fdchto chor\'f4b s\'fa \'e8ast\'e9
 nedostatky v oblasti soci\'e1lnej starostlivosti a pr\'e1vnej pomoci}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15747159\charrsid4606000 .}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3284807\charrsid4606000 
\par }\pard \ltrpar\qj \li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15747159\charrsid4606000 
\par }\pard \ltrpar\qj \fi708\li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid15747159\charrsid4606000 Cie\'beom predkladan\'e9ho }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid13243293\charrsid4606000 n\'e1vrhu je pripravi\'9d }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid10816079\charrsid4606000 podmienky pre }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 vypracovanie }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\b\insrsid13243293\charrsid4606000 \'84}{\rtlch\fcs1 \af0 \ltrch\fcs0 \cf1\insrsid13243293\charrsid4606000 N\'e1rod}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000 n\'e9ho pl\'e1nu rozvoja starostlivosti }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid4735372\charrsid4606000 o pacientov}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9961916\charrsid4606000  so zriedkav\'fdmi chorobami}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid4735372\charrsid4606000  v\~Slovenskej republike}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid9961916\charrsid4606000 \'93,}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13243293\charrsid4606000  podpora jeho implement\'e1cie do zdravo}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9961916\charrsid4606000 tnej a soci\'e1lnej starostlivosti }{\rtlch\fcs1 
\af0 \ltrch\fcs0 \insrsid10816079\charrsid4606000 v\~SR.  V}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9961916\charrsid4606000 \~eur\'f3pskom kontexte }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid10816079\charrsid4606000 m\'e1 n\'e1vrh }{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid3897963\charrsid4606000 p}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid10816079\charrsid4606000 odpori\'9d aktivity SR do medzin\'e1rodnej spolupr\'e1ce. N\'e1}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3897963\charrsid4606000 v}{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid10816079\charrsid4606000 rh nadv\'e4zuje aj na ned\'e1vno prijat\'fa}{\rtlch\fcs1 \af0 \ltrch\fcs0 \b\lang1024\langfe1024\noproof\insrsid12743143\charrsid4606000  }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\b\lang1024\langfe1024\noproof\insrsid1445126\charrsid4606000 s}{\rtlch\fcs1 \ab\af0 \ltrch\fcs0 \cs22\lang1024\langfe1024\noproof\insrsid12743143\charrsid4606000 mernicu Eur\'f3pskeho parlamentu a Rady 2011/24/E\'da z 9. marca 2011 o uplat\'f2ovan\'ed pr
\'e1v pacientov pri cezhrani\'e8nej zdravotnej starostlivosti}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid10816079\charrsid4606000 . Z\'e1kladn\'fdm poslan\'edm u\'9e viac ako }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9203136 p\'e4tn\'e1s}{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid10816079\charrsid4606000 \'9dro\'e8n\'fdch celoeur\'f3pskych aktiv\'edt na zlep\'9aenie starostlivosti o\~pacientov so ZCH je dosiahn}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3897963\charrsid4606000 u}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid10816079\charrsid4606000 \'9d dostupnos\'9d diagnostiky, lie\'e8by, mana\'9ementu a\~starostlivosti pre v\'9aetk\'fdch obyvate\'beov EU, prostredn\'edctvom \'9apecializovan\'fdch n\'e1rodn\'fdch Centier expert\'edzy a\~ich prepojenia do Eur\'f3
pskej referen\'e8nej siete. }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9961916\charrsid4606000  
\par }\pard \ltrpar\qj \li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9961916\charrsid4606000 
\par }\pard \ltrpar\qj \fi708\li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid10816079\charrsid4606000 S\~oh\'beadom na to,}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid13786497\charrsid4606000  \'9ee ide o\~koncep\'e8n\'fd strategick\'fd materi\'e1l, jeho vplyv na \'9at\'e1tny rozpo\'e8et a\~verejn\'e9 financie sa ned\'e1 }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid10816079\charrsid4606000 v\~s\'fa\'e8asnosti }{
\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13786497\charrsid4606000 vy\'e8\'edsli\'9d, dopad na verejn\'e9 financie bude mo\'9en\'e9 ur\'e8i\'9d a\'9e pri predlo\'9een\'ed }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid10816079\charrsid4606000 \'84}{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid13786497\charrsid4606000 N\'e1rodn\'e9ho pl\'e1nu rozvoja starostlivosti }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid10816079\charrsid4606000 o pacientov}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13786497\charrsid4606000  so zriedkav\'fd
mi chorobami}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid1445126\charrsid4606000  v\~Slovenskej republike}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13717861\charrsid4606000 \'93. Implement\'e1cia \'84N\'e1rodn\'e9ho pl\'e1nu\'93 bude znamena\'9d }{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid678138\charrsid4606000  }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13717861\charrsid4606000  }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid678138\charrsid4606000 pozit\'edvny zdravotn\'fd, soci\'e1lny}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid13717861\charrsid4606000 , spolo\'e8ensk\'fd }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid678138\charrsid4606000 a}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid7754746\charrsid4606000 \~v\~kone\'e8nom d\'f4sledku aj }{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid678138\charrsid4606000 finan\'e8n\'fd }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6824796\charrsid4606000 dopad}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13786497\charrsid4606000 . Taktie\'9e nevznikn\'fa negat\'edvne environment\'e1lne}{\rtlch\fcs1 \af0 
\ltrch\fcs0 \insrsid13717861\charrsid4606000  dopady}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13786497\charrsid4606000 , ekonomick\'e9 }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid13717861\charrsid4606000 dopady}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid13786497\charrsid4606000  ani vplyvy na\~ podnikate\'besk\'e9 prostredie a\~informatiz\'e1ciu spolo\'e8nosti. 
\par }\pard \ltrpar\qj \li0\ri0\widctlpar\wrapdefault\aspalpha\aspnum\faauto\adjustright\rin0\lin0\itap0\pararsid15806856 {\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9130220\charrsid4606000 \tab V\~medzirezortnom pripomienkovom konan\'ed bolo uplatnen\'fdch 42 pri
pomienok, z\~toho 7 z\'e1sadn\'fdch. }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551\charrsid6975551 V r\'e1mci rozporov\'e9ho konania bol}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551 a}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551\charrsid6975551 
 akceptovan}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551 \'e1}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551\charrsid6975551  z\'e1sadn}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551 \'e1}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551\charrsid6975551 
 pripomienk}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551 a Ministerstva financi\'ed Slovenskej republiky}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551\charrsid6975551 ,}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid6975551  m}{\rtlch\fcs1 \af0 \ltrch\fcs0 
\insrsid9130220\charrsid4606000 ateri\'e1l sa predklad\'e1 bez rozporov.}{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid3955646 
\par }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9320980 \tab }{\rtlch\fcs1 \af0 \ltrch\fcs0 \insrsid9320980\charrsid15806856 
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